Tointon, K. and Hunt, J. A., 2016. Enhancing wellbeing and quality of life in cystic fibrosis through holistic nursing. Nursing Children and Young People, 28 (8), 22 - 25.
Full text available as:
Tointon and Hunt sep 2016.pdf - Accepted Version
Restricted to Repository staff only until 7 October 2017.
Available under License Creative Commons Attribution Non-commercial No Derivatives.
Cystic fibrosis is one of the most common life limiting autosomal recessive genetically inherited conditions affecting Caucasians. It is caused by mutations of chromosome 7 responsible for encoding amino acid protein 1480, the cystic fibrosis transmembrane conductance regulator (CFTR) protein. The most common mutation, affecting 75% of patients with CF in the UK, is that of delta F508 which results in the omission of phenylalanine at position 508 in the 1480 chain. However, other rarer mutations exist resulting in differing presentations of the condition. Ellen, a teenager with a rarer presentation of CF, and her family, are drawn upon in this case study to discuss living with CF and its impact upon quality of life and well-being in life limiting conditions of childhood.
|Uncontrolled Keywords:||child health ; cystic fibrosis ; lif-limiting illness ; paediatrics ; respiratory system ; well-being|
|Group:||Faculty of Health & Social Sciences|
|Deposited By:||Unnamed user with email symplectic@symplectic|
|Deposited On:||23 Jan 2017 16:50|
|Last Modified:||23 Jan 2017 16:50|
Downloads per month over past year
|Repository Staff Only -|