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New genetic tests, new research findings: Do patients and participants have a right to know – and do they have a right not to know?

Brownsword, R., 2016. New genetic tests, new research findings: Do patients and participants have a right to know – and do they have a right not to know? Law, Innovation and Technology, 8 (2), 247 - 267.

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DOI: 10.1080/17579961.2016.1250376

Abstract

In the context of the systematic genotyping of UK Biobank’s participants and the piloting of non-invasive pre-natal testing within the screening pathway for Down syndrome, this paper considers the plausibility, basis, scope, and weight of the claim that participants and patients have a right to know as well as a right not to know the results of the genetic analysis undertaken. It also considers the possible relevance to these issues of the landmark decision of the UK Supreme Court in Montgomery v Lanarkshire Health Board.

Item Type:Article
ISSN:1757-9961
Uncontrolled Keywords:The right to know, the right not to know, genetic tests, biobanks, feedback of incidental findings, non-invasive prenatal tests, Montgomery v Lanarkshire
Group:Faculty of Media & Communication
ID Code:33738
Deposited By: Unnamed user with email symplectic@symplectic
Deposited On:10 Mar 2020 15:26
Last Modified:10 Mar 2020 15:42

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