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In ordinary times, in extraordinary times: Consent, newborn screening, genetics and pandemics.

Brownsword, R. and Wale, J., 2021. In ordinary times, in extraordinary times: Consent, newborn screening, genetics and pandemics. BioLaw Journal, 15 (Special Issue 1), 129 - 153.

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DOI: 10.15168/2284-4503-778

Abstract

Against the backdrop of newborn genetic screening and pandemics, this article examines disputes between parents, acting as proxies for their children, and healthcare professionals. While some will support parents, others will push-back against proxy consent and the right to veto actions that are proposed by the professionals. Whereas in ordinary times, such a push-back might seek to displace or downgrade parental rights (e.g. by appealing to professional duty or the optimisation of health) or to de-centre or dilute consent, in extraordinary times, rights and consent are superseded by appeals to responsibility, solidarity, and even “states of exception”.

Item Type:Article
ISSN:2284-4503
Uncontrolled Keywords:Proxy consent; newborn screening; genetic screening; stewardship; extraordinary times
Group:Faculty of Media & Communication
ID Code:35585
Deposited By: Unnamed user with email symplectic@symplectic
Deposited On:07 Jun 2021 12:22
Last Modified:15 Aug 2021 08:29

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