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Caregivers’ perspectives on the social and physical environmental factors associated with the play of their children with palliative care needs: A Q methodology study.

Jasem, Z.A., Randall, D. C., Darlington, A.S. and Lambrick, D., 2022. Caregivers’ perspectives on the social and physical environmental factors associated with the play of their children with palliative care needs: A Q methodology study. Journal of Child Health Care, 1367493521. (In Press)

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DOI: 10.1177/13674935211044875

Abstract

Children living with palliative care needs are less engaged in play, despite its importance in their lives. The environment may have a crucial role in supporting these children’s play. Understanding the importance and impact of environmental factors on children’s play is essential to being able to support their participation in play. Data were collected from caregivers (mostly parents) of children living with life-threatening/limiting conditions, who were between 5 and 11 years old. Thirty-nine participants were recruited from two children hospitals and two hospices in Kuwait and in the United Kingdom. The participants’ perspectives were explored using Q methodology. By-person factor analysis was used to explore the ranking of each statement. Content analysis was used to analyse the participants’ verbal comments. The most important environmental factors were the need for others to share play and get assistance to facilitate play. However, this is not always possible as these conditions, the life-threatening/limiting conditions, may be socially isolating. Children also experience limitations in accessing play resources that match their abilities and meet their play needs. Being aware and responsive to children’s play needs is essential for building appropriately supportive play environments for children living with life-threatening/life-limiting conditions.

Item Type:Article
ISSN:1367-4935
Uncontrolled Keywords:Palliative care;life-limiting conditions;life-threating conditions;play
Group:Faculty of Health & Social Sciences
ID Code:36907
Deposited By: Symplectic RT2
Deposited On:03 May 2022 14:01
Last Modified:03 May 2022 14:01

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